Ending a pregnancy for fetal abnormality

Overview

In this section you can find out about the experience of ending a pregnancy after the discovery of a fetal abnormality, by listening to people share their personal stories on film. Researchers travelled all around the UK to talk to 40 people in their own homes. Find out what people said about issues such as scans, understanding the baby’s diagnosis, making the decision to end the pregnancy and saying ‘goodbye’. We hope you find the information helpful and reassuring.
 
You may also be interested in our section on antenatal screening.

Polly Toynbee introduces the ending a pregnancy due to fetal abnormality section

Polly Toynbee introduces the ending a pregnancy due to fetal abnormality section

Ending a pregnancy for fetal abnormality - Preview

Ending a pregnancy for fetal abnormality - Preview

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Interview 35: And the doctor, because it was a doctor rather than just a sonographer or whatever the correct term is, was -, was scanning my wife and she hovered over the heart of the baby and said, “oh there's the heart we'll come back to that.” And as soon as, as soon as she said those words, both of us thought like well what's wrong.

Interview 13: They were unable to give any sort of idea as to the severity which made it very difficult to actually make -, we weren't making a decision based upon anything other than this is what we think will happen. This is what will likely happen. So I found that quite difficult and kept thinking well maybe it will be okay.

 

Interview 06

Mother: And we have a daughter, and at the time, two and a half, could you cope with a dying baby, and a two and a half year old? Is it fair to her? Is it fair to us?

Father: Well, they said it might not survive the labour, or even as long as that, anyway.

Mother: And I think I'd have hated to have seen any child of mine go through any pain.

 

Interview 22: It was just a case of doing what we could and telling people, because I just couldn't bear that people might ring or come to our house and, and just maybe drop themselves in it and say, “oh, and how's things?” And so I just felt that I had to beat people to it.

This section is from research by the University of Oxford.

Supported by:
UK National Screening Committee

Publication date: January 2006
Last updated: July 2017.

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