Motor Neurone Disease (MND)

Overview

In this section you can find out about the experience of motor neurone disease by seeing and hearing people share their personal stories on film. Researchers travelled all around the UK to talk to 47 people (including 11 carers) in their own homes. Find out what people said about issues such as symptoms, diagnosis, communication and treatment. We hope you find the information helpful and reassuring.

Jonathan Miller introduces the MND site

Motor Neurone Disease (MND) Site Preview

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Martin: When I was working my dad said ‘what’s wrong with your hands’ because I was struggling to do up my shoe laces. So, that was the first symptom of it.

Michael: It was quite devastating, to be honest. I guess I knew before they told me.

Ken: Also, I have to say it did flash through my mind that it meant I could retire very soon. And I was thinking, oh, that would be lovely. Perhaps I wasn't as aware of the consequences.

Sarah: There is one piece of equipment I would recommend to everyone with MND and that's a computer.

Mike & Gill: Communication aids, Mike’s just written there that he likes the whiteboards, which is these things here.

Paul: Over the following couple of years my condition has deteriorated to the point where, at the moment obviously I can no longer walk, can no longer weight bear.

Liz: To me I've got two choices, I can spend whatever time I’ve got left worrying about the end, or I can spend every tiny minute I’ve got left living

This section is from research by the University of Oxford.

Supported by:
Motor Neurone Disease Association Logo
NHS Service Delivery and Organisation Research and Development Programme

Publication date: March 2008
Last updated: August 2017